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Young woman with dark hair and a ng feeding tube, wearing a patterned blouse, smiling against a white background.
Smiling baby wearing a white bow and peach outfit with small white hearts, and medical tubing attached.
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Child wearing a large blue hair bow and floral shirt, smiling.
Baby wearing a baseball cap with a rainbow design, and a patterned outfit, smiling at the camera.
Smiling child wearing plaid pajamas on a white background.
Smiling baby in red and black plaid clothing
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Young boy smiling in a blue shirt with tree patterns on a white background.
Baby with blond hair wearing a green and white gingham outfit on a white background.
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Smiling baby in a burgundy outfit with bow headband, holding a wooden disc, white background.
Baby wearing a colorful rainbow-patterned outfit, looking upwards.
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Smiling child holding a "First Day of Pre-K" sign.
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Smiling baby wearing a pink dress and flower headband
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Portrait of a smiling person with short hair and a beard, wearing a blue shirt and navy hoodie.
A young girl with long brown hair and a pink hair clip, wearing a pink shirt, with her chin resting on her hand, looking upward pensively.
Cute baby in a knitted sweater and floral dress, sitting with a surprised expression.
Young child in orange shirt with short blonde hair, smiling.
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Laryngeal Cleft

How Rare Is It?

What is it?

an abnormal opening in the airway

What does it cause?

choking, swallowing, and breathing problems

How are children affected?

Some babies choke and inhale milk into their airway when they try to drink.

Some cannot drink at all.

Tragically, in severe cases, some will die.

Information Hub

  • Clefts 101

    What is a laryngeal cleft? Learn about the symptoms, diagnosis, and treatment.

    Learn more

  • Hero Journeys

    Learn how families navigated their child's journey with a laryngeal cleft.

    Read Journeys

  • Care Resources

    Build a team of providers, learn about treatment guidelines, and more.

    Explore Resources

  • Research Library

    Browse a list of published research pertaining to laryngeal clefts.

    View Studies

Recent Journeys

FULL COLLECTION
Journeys
Santiago’s Type 1 Laryngeal Cleft Journey
Santiago’s Type 1 Laryngeal Cleft Journey

Freya’s Type 1 Cleft Journey
Freya’s Type 1 Cleft Journey

Ethan’s Type 1 Cleft Journey
Ethan’s Type 1 Cleft Journey

Mila’s Type 2 Cleft Journey
Mila’s Type 2 Cleft Journey