the hidden cleft
It’s estimated a baby is born with a laryngeal cleft every one to two days in the United States alone.
what it is:
an abnormal opening in the airway
what it does:
causes choking, swallowing, and breathing problems
Watch baby Boston's video journey to understand what's it like to be born with a type 4 laryngeal cleft. Special thanks to Tracy Patterson Photography.
how it impacts:
Some babies choke and inhale milk into their lungs when they try to drink.
Some cannot drink at all.
Tragically, in severe cases, some will die.
how we help:
Laryngeal Cleft Network unites the entire laryngeal cleft community in order to improve the lives of children born with this birth defect.
Our website serves as a hub where parents and medical providers can get information and resources, share experiences and knowledge, and provide hope and support.
We invite you to explore our website, spread the word, and get involved.
Together, we can close the gap.
our programs
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Clefts 101
What is a laryngeal cleft? Learn about the symptoms, diagnosis, and treatment.
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Family Resources
Browse a variety of family resources that can help during a laryngeal cleft journey.
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Hero Journeys
Read about how other families navigated their child's journey with a laryngeal cleft.
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Travel Grants
Get help with the financial burden of traveling to access expert medical care.
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Provider Resources
Browse a variety of resources to support medical care professionals.
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Research
Get involved in research to help scientists determine the cause of this birth defect.
Learn how to get prepared and keep your child calm when the stakes are high. An SLP and type 1 laryngeal cleft mom shares tips for your swallow study and first ENT appointment.