The Hidden Cleft

It’s estimated a baby is born with a laryngeal cleft every day in the United States. Globally, thousands are born every year.

What It Is:

an abnormal opening in the airway

What It Does:

causes choking, swallowing, and breathing problems

Watch baby Boston's video journey to understand what it’s like to have a child with a type 4 laryngeal cleft. Special thanks to Tracy Patterson Photography.

How It Impacts:

Some babies choke and inhale milk into their airway when they try to drink.

Some cannot drink at all.

Tragically, in severe cases, some will die.

How We Help

Laryngeal Cleft Network unites the entire laryngeal cleft community in order to improve the lives of children born with this birth defect.

Our website serves as a hub where parents and medical providers can get information and resources, share experiences and knowledge, and provide hope and support.

We invite you to explore our website, spread the word, and get involved.

Together, we can close the gap.

Our Programs

  • Travel Grants

    Get help with the financial burden of traveling to access expert medical care.

  • LCN Facebook Community

    Get advice and support for your child while being part of the solution.

  • Clefts 101

    What is a laryngeal cleft? Learn about the symptoms, diagnosis, and treatment.

  • Hero Journeys

    Learn how other families navigated their child's journey with a laryngeal cleft.

  • Research Connections

    Participate in research to help scientists determine the cause of this birth defect.

  • Parent Section

    Browse recommendations and advice from parents who have walked this journey.

What’s New

Multimedia Library

Check out the latest posts in our collection.

Hero Journeys

Read the most recent laryngeal cleft journeys.

Subscribe