Who We Are

LCN was born out of a parent’s anguish. 

In 2023, after 19 years of multiple endoscopic surgeries, our co-founder’s son underwent an open surgery for his type 3b laryngeal cleft. The surgery was tough: four days in a medically-induced coma on a ventilator, a new tracheostomy and G-tube, 18 days in the hospital, and five weeks relocated to a new city 2,700 miles away for the surgery. Upon returning home, the family then isolated for another six months to avoid exposure to any illnesses that could damage the healing repair. (Read Theo’s Journey of ultimate triumph.)

While difficult, that isolation brought time to reflect, and a realization started to grow. The realization that other children and parents were struggling around the world, on a daily basis, with the same birth defect. And the observation that no organization existed to support these families and work with medical professionals to help improve the lives of these children. That newfound awareness - along with the desire to offer resources, connection, and ultimately hope to other struggling families - gradually transformed into an organized effort, and LCN was born in early 2024.