Our Impact

Community Feedback

  • Thank you for creating LCN! I cried several months ago when I found the group on Facebook because I finally felt like I wasn’t alone anymore in trying to figure his journey out.

    Ashley L.

  • What an amazing resource this newsletter is! So excited that mamas have a place to go to for facts and help!

    Laura P.

  • It’s incredible and inspiring to see how you are helping families affected by this condition, and how you are spreading awareness. Keep up the good work!!

    Jana J.

  • Thank you so much for putting this organization together. I know there are other parents out there that are as lost as I was in the beginning.

    Kristin O.

  • I am grateful beyond words for LCN. Being able to communicate with other parents and share stories among a community that truly understands The Hidden Cleft is so invaluable.

    Felicia Q.

  • Beautiful website and a much needed resource for the community!

    Ala’a A.

  • We have uprooted our family and will likely spend six months away from home. This grant is incredibly helpful in assisting with the increased expenses we have incurred while living far from home for so long.

    Joshua S.

  • We had to stay in Cincinnati longer than we had originally planned. Knowing we would be able to use the LCN travel grant to help with lodging helped us so much. We are so grateful!

    Brittnee A.

Please share your feedback with LCN!

2024 Travel Grant Program Recipients

LCN is honored to support the journeys of heroes born with a laryngeal cleft. We thank our donors, who have generously funded this program.

Clara - Type 4

“We traveled from Atlanta, GA, to St. Petersburg, FL, so that we could deliver our daughter under the care of Johns Hopkins All Children's Hospital, which is world renown for their treatment of children with CDH. While we knew about her CDH diagnosis, we were unaware that she also had a type 4 laryngeal cleft until her birth.

Thankfully, this hospital also has a world-renowned pediatric airway specialist, Dr. Smithers, who has also cared for Clara. We have uprooted our family and will likely spend six months away from home. This grant is incredibly helpful in assisting with the increased expenses we have incurred while living far from home for so long.”

Boston - Type 4

“Last August, Boston had surgery to repair the remainder of his original type 4 cleft and to have a stent placed. We recently returned to Cincinnati Children's Hospital hoping to permanently remove the stent, but two weeks later, the stent needed to be replaced.

The trip from Minnesota to Cincinnati was stressful because it is over a 10 hour drive. With two toddlers, this is not ideal. Due to Boston's medical needs, we had to stay in Cincinnati longer than we had originally planned. Knowing we would be able to use the LCN travel grant to help with lodging helped us so much. We are so grateful!”