Our Impact

Since our inception in February 2024, our primary focus and the bulk of our expenses have been directed towards the administrative side of operations, such as establishing and registering LCN as a federal and state nonprofit organization, and subscribing to various software programs to support our ongoing operations.  Currently, we are run solely by volunteers in their respective homes, therefore no personnel nor any office rent and related expenses have been or will be incurred in the foreseeable future. We hope to raise $10,000 during 2024 to help us scale and operate on a sustainable basis year-to-year.  

Our first IRS Form 990 will be filed in early 2025. In advance of that reporting, LCN provides the following financial disclosures:

• Our organization is entirely run by volunteers and has no paid staff. 

• Current business operating expenses are approximately $2,100 per year. 

• For the remainder of 2024, all donations will fund our Travel Grant Program. This program helps offset costs for families who need to travel to access medical care for their child with a laryngeal cleft. 

• Since our website launch on October 15, LCN has awarded two $500 family travel grants. 

• In 2025, we hope to fund and launch an awareness campaign to help families, providers, and the general public begin to recognize and better understand this hidden birth defect.