Our Impact

Community Feedback

  • Thank you for creating LCN! I cried several months ago when I found the group on Facebook because I finally felt like I wasn’t alone anymore in trying to figure his journey out.

    Ashley L.

  • What an amazing resource this newsletter is! So excited that mamas have a place to go to for facts and help!

    Laura P.

  • It’s incredible and inspiring to see how you are helping families affected by this condition, and how you are spreading awareness. Keep up the good work!!

    Jana J.

  • Thank you so much for putting this organization together. I know there are other parents out there that are as lost as I was in the beginning.

    Kristin O.

  • I am grateful beyond words for LCN. Being able to communicate with other parents and share stories among a community that truly understands The Hidden Cleft is so invaluable.

    Felicia Q.

  • Beautiful website and a much needed resource for the community!

    Ala’a A.

  • We have uprooted our family and will likely spend six months away from home. This grant is incredibly helpful in assisting with the increased expenses we have incurred while living far from home for so long.

    Joshua S.

  • We had to stay in Cincinnati longer than we had originally planned. Knowing we would be able to use the LCN travel grant to help with lodging helped us so much. We are so grateful!

    Brittnee A.

Please share your feedback with LCN!

2025 Travel Grant Program

2025 Recipients

LCN is honored to support the journeys of heroes born with a laryngeal cleft.

Special thanks to the employees at Pediatric Home Service and LCN’s 2024 year-end donors for their generous funding of this program.

Bowen

“Our time in Cincinnati was an incredibly positive experience, made even more meaningful by the amazing team at Cincinnati Children's Hospital. Dr. Rutter and his colleagues were not only highly skilled but also exceptionally easy to work with, fostering a collaborative and reassuring environment throughout the process.

Leading up to the trip, the support from the LCN community played a vital role in easing our minds. Reading different stories from others who have walked similar paths provided both perspective and encouragement. Connecting with like-minded individuals who truly understand the challenges and emotions involved was deeply comforting. Knowing we weren’t alone in this journey made a significant difference.

Additionally, the knowledge and shared experiences from LCN gave our family a sense of reassurance as we traveled, allowing us to approach the visit with greater confidence and peace of mind. The strength and solidarity of this community have been invaluable, and we are incredibly grateful for the support that has helped guide us along the way.”

2024 Travel Grant Program

2024 Recipients

LCN is honored to support the journeys of heroes born with a laryngeal cleft. We thank our donors, who have generously funded this program.

Clara - Type 4

“We traveled from Atlanta, GA, to St. Petersburg, FL, so that we could deliver our daughter under the care of Johns Hopkins All Children's Hospital, which is world renown for their treatment of children with CDH. While we knew about her CDH diagnosis, we were unaware that she also had a type 4 laryngeal cleft until her birth.

Thankfully, this hospital also has a world-renowned pediatric airway specialist, Dr. Smithers, who has also cared for Clara. We have uprooted our family and will likely spend six months away from home. This grant is incredibly helpful in assisting with the increased expenses we have incurred while living far from home for so long.”

Boston - Type 4

“Last August, Boston had surgery to repair the remainder of his original type 4 cleft and to have a stent placed. We recently returned to Cincinnati Children's Hospital hoping to permanently remove the stent, but two weeks later, the stent needed to be replaced.

The trip from Minnesota to Cincinnati was stressful because it is over a 10 hour drive. With two toddlers, this is not ideal. Due to Boston's medical needs, we had to stay in Cincinnati longer than we had originally planned. Knowing we would be able to use the LCN travel grant to help with lodging helped us so much. We are so grateful!”