What We Do
We bring the entire laryngeal cleft community together to close the gap.
We do this through:
Our website, which serves as a hub for our community to share and connect.
Our programs, which support parents, medical providers, and ultimately, the kids.
Our journeys, which show the world what it’s really like to live with a laryngeal cleft.
Our information, which helps educate and will continue to grow as scientific knowledge advances.
Our efforts, which are just beginning and will expand and change over time.
Because our kids, and those yet to come, deserve the chance to thrive.
We dream of the day laryngeal clefts no longer exist.
Until then, we promote awareness, early diagnosis, and effective treatment of laryngeal clefts.
Our guiding principles:
Patient-Focused - Improving patients’ lives is our top priority.
Independent - We are an independent group, not affiliated with any specific provider, hospital, or institution.
Parent-Supporting - We believe validating and supporting parents is crucial to patient health.
Provider-Supporting - We promote awareness and access to information for health care providers.